I took Doodicus to his second therapy session this morning. Dr. Rita (that was his nickname the last time, right?) had called and spoken to Doodicus’ teacher before we arrived to ask for himself how Dood was doing in school. After he told us that the teacher confirmed the concerns from our first appointment, Dr told us quite bluntly that the medication – 20mg Daytrana patch – isn’t working, and that we would need to schedule an appointment with the psychologist, Dr Herring. In a way, I was glad to hear this because it meant that things can be better for Doodicus, but I’m very worried about the adjustments we’ll have to face.
We spent 90 minutes with Dr Rita discussing how the pervasive feelings of how Dood thinks he does nothing right. We talked about a 504 plan and an IEP, details of what’s involved forthcoming. I just can’t get into it now because honestly, I don’t have enough information. But it’s finally happening. Dr Rita also thinks his teachers are woefully-prepared to deal with his ADHD, and told us that Doodicus’ failure to thrive this year is directly AND indirectly related to the personnel at his school. Sure Dood is responsible for staying organized and completing work and paying attention, but he’s also responsible for making sure the teachers DO THEIR JOB AND HELP HIM stay organized, complete his work and pay attention! His teacher’s suggestion this past fall that included assigning a “buddy” to help him get his assignments written in his assignment book was just another confirmation that his teachers are clueless: it’s the teacher’s job to make sure his assignments are written down, not a classmates; and there’s the added concern of how negatively this could affect Doodicus by creating a situation for additional stigma.
As for the teacher’s repeated admonishment that fourth graders should no longer require everyday review of their assignment book by the teacher, Dr Rita said children with ADHD work at approximately 75% maturity and responsibility level of “normal” children. Another indication that his teachers don’t get it because they want to treat all the kids the same, and obviously they are not.
In case you weren’t sure before, we like Dr Rita very much. He seems genuinely concerned and also confident that we will make things much better for all considered. Let me share this last little tidbit that made me a believer in Dr Rita: The clinic’s policy only allows appointments to be scheduled two out at a time. This was a concern because it would mean it would be almost impossible to get the slots we needed, which were late evenings, if we wanted to eliminate our need to take a whole day off from both work and school since four hours alone are devoted to travel. He personally came up to the front desk with us and had the limitation lifted from our account and I was able to schedule appointments approximately every three weeks up through this summer.
The other extra step he took was even more remarkable. The psychiatrist’s FIRST available appointment happened to be in three weeks on a Friday, and only because someone had just cancelled. The initial problem with that was we wouldn’t be able to see Dr Rita the same day as he sees patients at a satellite clinic on Fridays. Trying to coordinate both appointments on the same day was proving to be a statistical nightmare as Dr Herring’s next available time wasn’t until June and we really need to get Doodicus switched to medication that actually HELPS. Dr Rita said it was important enough that he would make this one-time arrangement and come into his office that same Friday. We now wouldn’t have to make two trips in one week!
On a related note: The reason for the opening with Dr Herring was because the clinic had just brought in a N.P. (Nurse Practitioner). The scheduler said she couldn’t schedule us with the NP because our insurance wouldn’t cover it. When she said that, I replied, “I’m not going to limit our care to what my insurance will or will not cover. If we have to pay out-of-pocket, we will.”
I overheard a woman the other day talking about how her daughter’s insurance “kicked her out of the hospital.” I’m not going to get all preachy about this, but her insurance did NOT kick her out of the hospital. The discharge planning department didn’t have enough medical necessity from the doctor to report to her insurance the need for her continued stay unless she wish to stay and pay out of pocket for the bed. Just FYI.
OK, need to get this published before my internet crashes again. Plus I need to research 504 Plans and IEPs. Why do I always feel that the more information I have, the more time I feel I have wasted on being ignorant?